News

It's OK for parents not to feel OK all the time; no one is OK every day. Many parents with neurodivergent children feel guilty about their anger or worry, but this is normal. Be sure to check in with ...
The drug Givinostat has been brought into parts of Britain. We want that too, but we need the government to pay for it,' said ...
The desperate parents of a disabled child are pleading with the NHS to give their son access to a new drug. Jessica and ...
Quoted from Patient, a baby will start lifting his body to start standing at the age of 10 months. Then, he will stand ...
Wilson Lam, 36, and Hannah Lam, 31, from Northolt in North West London are taking on the 'Pedal Paddle Peak' challenge in the ...
Ian has been a Patron of Muscular Dystrophy UK since 2019 but his involvement with the charity began almost three decades ...
Taevion Norris graduated from high school while awaiting a heart transplant at Lurie Children’s Hospital in Chicago Norris, ...
Background Over the last few years, there has been increasing attention to the involvement of the central nervous system in Duchenne muscular dystrophy (DMD). The aim of this study was to assess the ...
One of the most common forms of muscular dystrophy is Duchenne muscular dystrophy (Duchenne). Globally, Duchenne is the most prevalent form of muscular dystrophy in children. It primarily affects boys ...
Learning about a sibling's DMD diagnosis. It’s common for patients to want to know more about what’s causing them to be ill and their DMD diagnosis and it’s the same for their families ...
A child’s diagnosis can help families make sense of past struggles and give them a sense of what strategies might help for those that lay ahead.
Re: Anxiety: Get your child evaluated. My daughter had anxiety as a child, and it turns out it was the tip of the iceberg. She was later diagnosed in college with ADHD and is on the spectrum.