Evrysdi treatment is safe and effective at improving or stabilizing motor and lung function in adults with SMA for up to 2 ...

Columnist Sherry Toh explains how her doctors demonstrated the correct way to provide a supportive environment for LGBTQ+ ...

Tyler, who has SMA, shares how smart home technology helps support his daily routines, independence, and overall quality of ...

A trip to England with her friend of 30-plus years prompts columnist Connie Chandler to give thanks for kind friends who ...

Buckle up, it's going to be an incredible ride, columnist Helen Baldwin says in a letter to her 13-year-old self.

Treatment with salanersen slowed neurodegeneration and improved motor function in children with SMA in a Phase 1 trial, ...

Living with SMA isn't just about survival, says columnist. There's also the emotional weight of preparing for the next crisis ...

Learn what you need to do to have a fun, safe, and stress-free day at an amusement park when you have spinal muscular atrophy.

Connie Chandler is a columnist for BioNews and the Director of Family Engagement at the nonprofit organization, We Carry Kevan. She grew up in the foothills of North Carolina but now owns a home and ...

No description.Kevin graduated from North Carolina State University with a bachelor’s in English in 2016, and he is passionate about different forms of storytelling. He started at Bionews in 2017 as a ...

Many SMA patients continue to see gains in motor function with long-term Spinraza treatment, a real-world study from Switzerland reported.