Columnist Sherry Toh explains how her doctors demonstrated the correct way to provide a supportive environment for LGBTQ+ ...

A trip to England with her friend of 30-plus years prompts columnist Connie Chandler to give thanks for kind friends who ...

Tyler, who has SMA, shares how smart home technology helps support his daily routines, independence, and overall quality of ...

Treatment with salanersen slowed neurodegeneration and improved motor function in children with SMA in a Phase 1 trial, ...

Buckle up, it's going to be an incredible ride, columnist Helen Baldwin says in a letter to her 13-year-old self.

Learn what you need to do to have a fun, safe, and stress-free day at an amusement park when you have spinal muscular atrophy.

Living with SMA isn't just about survival, says columnist. There's also the emotional weight of preparing for the next crisis ...

Many SMA patients continue to see gains in motor function with long-term Spinraza treatment, a real-world study from ...

Just like that, the inside of the charger was fried and melted beyond repair. I didn’t anticipate this malfunction and didn’t have a contingency plan for it, but I knew that if I didn’t have power the ...

Connie Chandler is a columnist for BioNews and the Director of Family Engagement at the nonprofit organization, We Carry Kevan. She grew up in the foothills of North Carolina but now owns a home and ...