Patient Advocacy Initiative staff speak on Notre Dame’s Rare Disease Day event and impact for the rare disease community.

Donna Reynolds of Richmond knows all too well the devastating toll that a rare disease can take, not just on an individual, ...

Rare Disease Day is observed annually on the last day of February to raise awareness for the 300 million people worldwide ...

Did you know that one out of every ten Americans has a rare disease? That's why Rare Disease Day is so important to so many ...

Williams, who has performed the National Anthem at baseball stadiums as part of Boehringer Ingelheim’s Breathless campaign, ...

The Permanent Council of the Organization of American States (OAS) will hold two meetings on Wednesday, March 5, in the Simón ...

Takeda made it rain zebras at a Boston Celtics game Friday. The stunt saw 100 toy zebras parachute from the arena’s rafters ...

With the right policies, advanced science, and strong leadership in government agencies, Donald Trump has the power to save ...

Zevra used the awareness day to roll out the “Learn NPC, Read Between the Signs” disease awareness campaign. The biotech won ...

Rare Disease Day, observed on Feb. 28, brings attention to uncommon diseases affecting populations of 200,000 or fewer. In ...

As we observe Rare Disease Day today, let us take a look at seven drugs poised to be approved to address rare diseases in ...